(Includes information on reflux, EB friendly baby products, developmental issues, day to day care for a baby with EB, frequently asked questions, complcations in EB, airway issues, plus a whole lot more!) (9/30/09- NEW pages added!!)
If you would like to learn more about me and my EB, you can find my page here.
National EB Awareness Week Events
On-line EB Support Groups
For information on wound care and wound care products.
Information on secondary complications often associated with EB,
The genetics of EB
EB in the news and up coming EB event s *(UPDATED 01/25/2010)*
*updated 3/3/10* A page dedicated to the Bone Marrow Transplants currently underway in Minnesota
Hospital and Surgery Tips
Information on EB related infections and tips on overcoming them
To read personal stories of others with EB, click here, or to visit sites of others with EB, click here.
To visit my Garden of Angels, a place to honor those who lost their brave battle to EB, click here.
To see the results of the 'Growing up with EB Survey', click here. To take the 'Growing up with EB Survey' click here.
I have a new guestbook:) To sign the guestbook, click here. To view the guestbook, click here. I love getting comments and suggestions about my site. You can also email me at well.
To learn about the history of Garrett's House, click here.
For those looking for EB Florida, click here
